Phoebe

Phoebe’s journey began before birth when doctors discovered a brain cyst and other issues. She underwent her first open-heart surgery at just 5.5 months old, and genetic testing later confirmed she has KBG syndrome. At 7 months, she was diagnosed as legally blind. She is highly prone to MRSA, making any surgery critical. She had back surgery to reset rods and fuse her spine but the outcome was not as hoped. Her heart is monitored annually, and she will need surgery soon due to increasing shortness of breath. She also has hearing loss but cannot wear hearing aids due to chronic drainage.

Phoebe goes to school at Meeting Street, where everyone knows and loves her. She loves to spend time with her family and brother in New Hampshire. She has a big heart for babies and loves babysitting with her mom. She’s also super creative and enjoys arts and crafts, but nothing tops her love for Harry Potter! She’s counting down the days until she finally gets to visit The Wizarding World at Universal!