Owen

Owen's story began with an ER visit that led to a diagnosis of Fanconi Syndrome, with the underlying cause being Cystinosis, where cystine accumulates and damages major organs. His daily rigorous treatment manages the disease. He is facing a future that may require a kidney transplant.

Owen is a sweet young boy who loves basketball, especially the Celtics and his favorite player, Jayson Tatum. He also enjoys playing the Xbox and board games with his family. One of his favorite places is the Foxwoods arcade. Owen and his family can't wait to go to Disney and stay at Give Kids The World Village!