Benjamin

Since Benjamin was six months old, he has been having seizures, which doctors only recently captured on an EEG. Since then, he's been seeing a neurologist and is on medication to control the frequency and level of the seizures. Ben is also on IVIG therapy as his temperature can't be regulated.  He has also had recurrent hospitalizations for his ears and throat, having had 7 sets of ear tubes placed and his tonsils and adenoids out. He's struggled to eat by mouth so doctors suggested a feeding tube, but his family worries it might take away his sense of taste and smell as Ben is already legally blind and deaf. Ben also has a cleft palate, which adds to his health challenges.

Benjamin's favorite colors are dark blue and red. He finds joy in music and loves playing with sensory balls and pinwheels. Benjamin and his family can't wait travel to Give Kids the World and the parks where they can have some much needed family time and create memories to last a lifetime!