Adilyn

At her 20-week anatomy scan, doctors delivered the heartbreaking news that Adilyn had a left-sided Congenital Diaphragmatic Hernia (CDH) with a 50% chance of survival. Her abdominal organs had moved into her chest cavity, compressing her heart and preventing her left lung from developing. Adilyn demonstrated incredible resilience from the day she was born. She spent 55 days in the Cardiac Vascular Intensive Care Unit, was placed on cardiopulmonary bypass (ECMO) at 23 hours old, and underwent repair surgery the next morning. Despite numerous complications, she defied the odds. Now 6 years old, Adilyn is closely monitored at Boston Children's Hospital by a team of specialists. Though she has faced challenges, her perseverance continues to shine. ​

Adilyn is a very strong and loving girl. She and her sister are pink and purple princess loving sidekicks. They stay by each other's sides every step of the way. Adilyn and her family are super excited to go to Disney and stay at Give Kids the World!​